about 6 months ago - 2 comments
about 6 months ago - 11 comments
Doctors are still trying to decide whether or not I have a G6PD deficiency in relation to my methemoglobinemia. This question kept being asked of me while I was in the hospital. What is it and what does it mean?
G6P2 deficiency is a sex-linked, inherited enzyme deficiency that causes early breakdown of redblood cells which
about 6 months ago - No comments
I am still recovering from my methemoglobinemia nightmare that began November 2, 2009. I have 1 more month to go until my red blood cells have fully regenerated. I am feeling better, but still very weak. I can not walk very long, without losing my breath. I look like Beetlejuice, too bad it’s not Halloween.
I
about 6 months ago - 3 comments
I just received documentation from poison control regarding my methemoglobinemia, that I should avoid all class cytochrome p450 medications in the future. What are these medications? What does this mean?
Cytochrome P450 is a family of the most powerful detox enzymes. There are over 60 forms, with hundreds of variations possible. They have to do with
about 6 months ago - 7 comments
I had unusual skin lesions off and on during my teen years, and finally was diagnosed with Lupus in my 30’s. I had what looked like a staph infection on my arms and neck, and the well known “butterfly rash” across my nose and cheeks. After many years of misdiagnosis, a dermatologist biopsied a lesion
about 7 months ago - No comments
My body continues to heal from my brush with death. I am currently able to oxygenate on my own, and only need the supplemental oxygen to walk long distances. The fatigue is my enemy right now, but each day I get stronger. The human body is absolutely amazing in its’ ability to heal. I have
about 7 months ago - 8 comments
I also suffered from hemolytic anemia during my dapsone nightmare. In addition to the methemoglobinemia and sulfhemoglobinemia, I had this battle to face. Hemolytic anemia is when a person’s own immune system attacks the red blood cells and causes them to destruct prematurely. The bone marrow is not able to keep up with the production
about 7 months ago - 4 comments
In addition to the methemoglobinemia, I also was noted to have sulfhemoglobinemia. This is a very rare condition in which there is too much sulfhemoglobin in the blood. It is a greenish pigment that can not be converted back to normal hemoglobin. So, it can not carry oxygen and causes cyanosis even at low levels.
about 7 months ago - 9 comments
While being hospitalized with my methemoglobinemia, I had to be airlifted to another hospital. Wow, I just got the bill….$42,000 for the 1 hr 10 min helicopter ride. Don’t get me wrong, I am grateful for the air ambulance service and their personnel….They saved my life, and countless others everyday. But, I would have rather
about 7 months ago - 1 comment
So alot of people have asked why I’m still sick and out of work. So here it goes:
On November 2, 2009, I began taking Dapsone, a medication to treat a lupus lesion on my face. Everything appeared to be on the mend until about 3 weeks later. I began feeling weak, tired, and dizzy.
